I am not writing this blog for sympathy. I do not pity myself. No, I do not like having this autoimmune disease, but it could far worse! I am praying that God will reach those that need Him in their journey through this disease!
*** I need to let you know there will be graphic pics of psoriasis patients on this blog, but I want you to understand what a psoriasis patient, what I go through on a daily basis.
This little snippit was taken after I had been at Megan’s Senior Homecoming parade. I stood in the shade and had long sleeves and pants on… Still my flair up was horrible! Each spot had fever in it and was so very painful!
This picture is of my swollen ankle and part of my leg… this is the same time as the video from above…

BEFORE I START WITH THIS BLOG… IF YOU SEE SOMEONE WITH SKIN ISSUES, MOST LIKELY IT ISN’T CONTAGIOUS! PLEASE DON’T TREAT THEM LIKE THEY ARE GROSS, OR A LEPER! WE ARE NORMAL PEOPLE WITH AN UNFORTUNATE AUTOIMMUNE DISEASE… TREAT US NORMAL… PLEASE!
In my blog about living with psoriasis, I didn’t really go into the process it took to find the right combination of meds that put me into remission, I tried to remember all of the different combos we tried, but the number was so high, there was no way I can tell you, but I can tell you I felt like a guinea pig trying to find the correct combo!
I have a reason for blogging on psoriasis again, and I will get to that, but first I want you all to understand why when we finally found the combo it was such a God thing! At the end of this blog, I have put a list of the 7 types of psoriasis and I have listed a lot but not all of the drugs. You can get an idea of the pain that psoriasis patients go through. I have had psoriasis for approximately 35 years. GAH! I’m old… lol. Anyway, I wasn’t diagnosed until 1999, so it has been 19 years of trying different drug cocktails… aka drug combinations, but about 1 1/2 years ago I went into remission! Clear skin, joints were strong enough for me to start wearing heels, and cute wedges (I did break my foot wearing some cute wedges. Everyone asked me if I threw them away… ummm NO they are too cute to throw away!!) Anyway, so for 17-18 years we tried different combinations of meds and finally found THE combo that worked! PRAISE GOD!!!
“But first,” for a while, I have been asking God for a way that I can reach out to other psoriasis patients, and make a little money to help with my healthcare… I have a strong supporter in my husband!!! He works and is completely comfortable with me not working; however, my healthcare costs a lot of money and I feel really guilty about that. So in God’s way and in His timing, He opened up a little gig for me. Almost a year ago, my rheumatologist was talking to the drug rep about me… ME! He was telling him my story, however, he didn’t even realize the whole story when he was discussing me to this rep. I’ll explain that part in a minute.
So the drug rep went back to the CEO of the drug company and told him my story. MY STORY… LIL OLE’ ME! Lol Then the CEO calls my doctor and they discussed my long history and everything we had tried with no luck, but I started this particular drug the day they started filling the syringes. He explained that I had tried a different drug that was basically the same drug with one difference… here’s how he explained it to me… say the drug was a car. The drug that didn’t work would fix a flat tire on the right side, where the drug that did work would fix the flat tire on the left side… it was a really good analogy for me because I’m not the science girl.
After my doctor talked to the CEO of the drug company, I had an appointment with my doctor. I have an unusual relationship with this doctor. He is one of my favorite doctors ever, he jokes around with me, but he will chew me out when I need it. He sometimes gets so angry with me he has to leave the room… when this happens, Mom and I start praying that he comes back happier, and he always does. Unless you have a relationship like this with a doctor, I do not know how to explain it. It is in no way inappropriate. It is just fun.
Anyway, back to the story… He comes in to the room I’m in and we start talking about how I’m doing. He always looks at my hands and goes knuckle to knuckle and squeezes them and if one hurts I am supposed to say yes. His favorite thing is if I have an obviously inflamed knuckle, he will squeeze it extra hard… and then he will just look at me while I try to fight the tears and laugh at the same time… he is definitely a character… ugh I’m getting off track again…
So he comes in the exam room, and asks how I’m doing and I tell him I’m doing great! He looks me over and as he always does, I told him that I was able to wear a pair of heels for the first time in close to 20 year. He starts to tear up (of course, he would never admit to that) and he tells me to stop that… lol! Then we talk about my skin. He sees that my skin is clear… but what he doesn’t know and what he didn’t tell the CEO was that my skin cleared up within the first week after taking the new drug. He had no idea, because my appointments are scheduled about 3 months apart. Well, this time he got up and left the room… I’m assuming he had to go into his office and have a good cry. He truly cares about my health, and I know that he was elated with this news.
When he came back, there were no visible signs of crying, but I’m gonna just believe he was so moved he had a huge cry… lol. He actually came back in and said ( and this is to the best of my recollection), “I don’t even want to tell you this because you are the type of person someone hires to be in the back ground and you end up on the billboard.” I ask him what he was talking about and he answers, “I seriously don’t want to tell you, but the CEO of the drug company wants you to speak at their conferences, and maybe even make an educative commercial. OH HERE IT COMES…” Yes, he saw my huge smile and I might have been bouncing in the chair, I can’t really remember-but that is pretty much a given… lol. He mentioned I would probably want to ask for hair and makeup and of course a limo. etc… I was on cloud 9! I knew that this was God answering my prayer!
Well, nothing happened for almost a year… I had stopped listening to God and doing what He told me to do, then I prayed and asked Him what I was to do. He told me to start this blog, so I did… guess what!!! Within 2 weeks of writing this blog to honor His Glory, my doctor called me and asked me if I still wanted to be a STAR! I told him, “DUH, of course I did!” So he told me of an opportunity where they wanted me, and gave me some information and asked if he could give the person in charge my information. He also talked to me about what to ask for from them in the way of compensation… So I immediately think, “OMG WHAT AM I GOING TO WEAR????” I am assuming they are doing the educational video. Then I get an email from the lady in charge and she wants to have a phone conversation that evening.
She called me and the first thing she informed me of was that this was a conference of doctors and others in the medical field, and I will be speaking to 400-500 people. SERIOUSLY? 400-500 PEOPLE?! OMG…. well you all know I can talk, but I forget words, which can be a real problem when speaking to a lot of people… PRAYER REQUEST**** PRAY THAT I CAN REMEMBER ALL MY WORDS!!! PLEASE!!!
She explains that there are a lot of different meetings during the conference but that I will speak to the general meeting with everyone that attends… eeeekkkkk!! Here’s what she said will happen… there will be a man interviewing me with questions that I will have already been given… makes that easier… then my rheumatologist and my dermatologist will come out and talk about me and my case… the whole general session is about this drug and my case… how humbling!!! Only God brought this together! And only in His timing… He wanted me to be listening to Him and doing His will, then and only then did He bring this to fruition.
So, the end of February, Mom, Gypsy (my service dog), and I will be heading to Dallas for this conference. PRAYER REQUEST****** I AM ASKING FOR NO ISSUES TO COME UP. I WANT EASY PEASY WITH THIS… GOD KNOWS WHAT I MEAN BY THAT…
I have at least one conference call, and a possible in person meeting with the man interviewing me coming up. I am so excited about this opportunity! I have an idea I want to talk to the CEO about, and I want him to really listen to me, so PRAYER REQUEST****** ALLOW HIM TO LISTEN TO ME AND NOT THINK I’M A BABBLING IDIOT!
On top of all of that coming up, I am working this liver drug study, had my last iron infusion today, I have to go next week to get released from my surgery I just had (although I don’t think she will release me until I have signs of menopause… ugh) I have multiple doctor appointments as usual, but with having the surgery and my blood count being off, that just added to everything, oh and did I mention I have the worlds worst stye in my eye? Can I say ENOUGH ALREADY? No then I might get hit with a lot more… Please no!
My initial reaction was not to praise our Mighty Father! My initial reaction was what to wear… I am still a work in progress… but when I did sit down and realize that God was behind this and the timing of it, I realized that I really, really need more work… PRAISE GOD FROM WHOM ALL BLESSINGS FLOW!!!

Now you can skip this part, or you can look through it. It is just a little education about psoriasis… the types, and different drugs used to try and fight this horrible disease…
There are 7 types of psoriasis: (These explanations and pictures come from Web MD and google.)
1 – Plaque psoriasis – aka psoriasis vulgaris – this is the most common type of psoriasis. 8-10 people with psoriasis will be diagnosed with this type. Plaque psoriasis causes raised, inflamed, red skin covered with silvery, white scales. These patches may itch and burn. It can appear anywhere on your body, but often pops up in these areas:
- Elbows
- Knees
- Scalp
- Lower back

**THIS IS THE TYPE I HAVE WITH THE VARIATION THAT MINE IS PHOTOSENSITIVE PLAQUE PSORIASIS.
2 – Guttate Psoriasis -This type often starts in children or young adults. It happens in less than 2% of cases. Guttate psoriasis causes small, pink-red spots on your skin. They often appear on your:
- Trunk

- Upper arms
- Thighs
- Scalp
Triggers include:
- Upper respiratory infection such as strep throat or tonsillitis
- Stress
- Skin injury
- Certain drugs such as beta-blockers
3 – Pustular psoriasis is a skin disease. You’ll see white bumps filled with pus near or inside red skin blotches. These are called pustules, and they can hurt and be scaly, flaky, or itchy. Even though you see pus on your bumps, it’s not an infection. You can’t catch pustular psoriasis from someone else or give it to others.
Pustular psoriasis usually happens to adults — it’s rare for kids to have it. It can run in families. You can get pustular psoriasis either on its own or with another kind of psoriasis called plaque psoriasis.
4 – Inverse psoriasis affects the skininside the folds of your body. It gives you red, shiny patches in certain places, like:
- In your armpits
- In skin folds around your genitals and between your buttocks
- Under your breasts
- In your groin
5 – Erthrodermic Psoriasis – This is a rare but very dangerous form of psoriasis. It’s important to know the symptoms. If you think you have erythrodermic psoriasis, see your doctor right away.
Fiery red skin from head to toe is the main symptom. Your skin is also covered in scales and peels off in large pieces. It can be very painful and itchy. You might see tiny blisters called pustules that are filled with pus.
Symptoms can develop over time, but they can come on suddenly too.
You also may have:
Your skin is important to your overall health. It helps control your body temperature, keeps germs and toxins out, and holds moisture in. Erythrodermic psoriasis throws all this off, and the results can be life threatening. They include a dangerously low body temperature (hypothermia), the loss of much-needed proteins and fluids, and severe illnesses like sepsis or pneumonia. If you lose too much fluid, your heartwon’t have enough blood to pump. That can lead to shock, kidney failure, or heart failure.
7 – Pediatric Psoriasis – is a disease that causes itchy, dry patches on your skin. Up to 40% of people with psoriasis have symptoms before they’re 16 years old, and 10% get it before they’re 10.
Children can have mild, moderate, or severe psoriasis. It’s a lifelong condition with no cure, but you can treat the symptoms with medication. Most pediatric cases of psoriasis are mild and get better with treatment.
Psoriasis isn’t contagious. Often, a bacterial infection like strep throat triggers psoriasis for the first time in children. Other kids get certain genes from their parents that make them more likely to get it.

Things that raise a child’s risk of getting the disease also include:
Now to explain the drugs that MDs use to treat these horrible diseases…
1 – Topical psoriasis treatments include:
- Topical corticosteroids. These drugs are the most frequently prescribed medications for treating mild to moderate psoriasis. …
- Vitamin D analogues. …
- Anthralin. …
- Topical retinoids. …
- Calcineurin inhibitors. …
- Salicylic acid. …
- Coal tar. …
- Moisturizers.
2 – Antimetabolites these include:
- Methotrexate this is a low dose chemo drug … I was on this drug for many years. This was used in many of my med combos.
- Otrexup – Methotrexate is the generic name
- Trexall – Methotrexate is the generic name
- Rasuvo – Methotrexate is the generic name
- Hydroxyurea -this is another low dose chemo drug.
3 – TNF alpha inhibitors
- Humira – I tried, but was allergic.
- Remicade – actually put me into remission… had to get off for surgery, when I got back on, I was highly allergic to it (meaning my throat would close)
- Enbrel – tried for a while, didn’t help much
- Renflexis – never tried
4 – Interleukin inhibitors
- Stelera – tried this for a long time combined with many different meds, but just didn’t clear up my skin.
5 -Calcineurin inhibitors
- Neoral
- Cyclosporin – tried several times in combo with different meds… didn’t work for me
- Gengraf
6 – Glucocorticoids – tried several of these steroids… they work for a time, but the side effects are of the devil!
- Triamcinolone
- Kenalog-40
- Prednisone
- Clinacort
- Kenaog-10
- Aristospan
- Metholyprednisolone
- Dexamethasone
7 – Antisporiatics
- Methotrexate
- Soriataine
- Acietrin
- Otrexup
- Trexall
- Rasuvo
8 – Topical antisporiatics
- Donvox
- Tazorac
- Calcipitriene
- Taclonex
- Betamethasone
9 – Other biologics
- Cimzia – tried it in combo. it worked but could not get my hands on it any more.
- Simponi – this took the place of Cimzia… so far so good.
- Cosentyx – did not work at all
- Taltz – put me into remission with a combo .
- Siliq
There are many other meds for psoriasis, but these are the main ones.